Sage Palliative Medicine & Chronic Care

Serious health-related suffering experienced by children with disability and their families living in Bangladesh: A scoping review

Informações:

Sinopsis

This episode features Suzanne Smith (Master of Palliative Care student, Flinders University, Australia; Victorian Paediatric Rehabilitation Service, Australia), Dr Megan Doherty (University of Ottawa, ON, Canada; Children’s Hospital of Eastern Ontario, Ottawa, ON, Canada) and Dr Mostofa Kamal Chowdhury  (BangabandhuSheikh Mujib Medical University, Dhaka, Bangladesh). What is already known about the topic: The majority of children who need, but cannot access essential palliative care and pain relief, live in low-and middle-income countries. An estimated 10 million Bangladeshi children live with a disability and associated serious health-related suffering that may lead to premature death. Children from low- and middle-income countries are underrepresented or absent from existing palliative care reviews. What this paper adds: This review illuminates the extreme health-related suffering experienced by children with disability and their families in Bangladesh in the physical, social, and emotional/spiritual d