Living With Cystic Fibrosis

CF Realities in India

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Sinopsis

We need to education and come up with solutions to help the people of India with cystic fibrosis.  Facts of CF in India:There are 40,000 people diagnosed with CF in the U.S. and 70,000 worldwide, but the Bonnell Foundation is certain those  numbers are low.  CF doctors in India and the U.S. believe that there could be between 35,000 and  140,000 people with CF in India (India has a population of 1.4 billion). The life expectancy in India for someone diagnosed with CF today is between 7 to 12 years old. If you live into your 20's that is considered old. Dr. Sneha Varkki says she loses a patient every month to the disease.Dr. Grace Paul works from the U.S. to help people with CF in her native land. She helped  train and continues to support Dr. Sneha Varkki. There are no CF centers, no newborn screening, no health insurance. The government doesn't recognize the disease yet. Infants are dying of malnutrition before they can even be diagnosed with CF.  The solution: education and getting all parties to work toget