Health Check

Sickle cell disease: Fighting for the future

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Sinopsis

“Sickle cell is not all that we are – Sickle Cell is solvable.” Lea Kilenga Bey from Kenya founded the non-profit Africa Sickle Cell Organisation to campaign on behalf of people like her who live with an inherited blood condition known as sickle cell disease. Now a group of experts from around the world are calling on Governments to provide better care for people with conditions like Lea’s. It comes just weeks after a study published in academic journal The Lancet Haematology showed that the number of people around the world who die with sickle cell disease could be as much as 11 times higher than previously estimated. Claudia Hammond speaks to Lea and hears from Professor Jennifer Knight-Madden in Jamaica where pioneering research has led to a newborn screening programme that helps to diagnose and treat Sickle Cell Disease in babies. Side by Side is a pilot initiative led by the Alzheimer’s Society in the UK, pairing up volunteers with people living with dementia based on their common interests. It’s how Da