Living With Cystic Fibrosis

In this episode Laura Bonnell talks with Dr. Samya Nasr, Director of the CF Clinic at the University of Michigan hospital, and Professor of Pediatrics.  In 1997 Dr. Nasr began talking to  doctors in her native country of Egypt about the fact that many CF patients were not being diagnosed there.  They didn't believe her at first.  In 2007 Dr. Nasr convinced doctors it did exist after testing people with symptoms, and diagnosing 1,000.  She talks about the challenges of today (lack of medications), the challenge for the future (getting pharma to license drugs so they will be covered under insurance) and getting patients CF modulators. Dr. Nasr will also explain how desperate CF families are to see all of these challenges met.For more information on The Bonnell Foundation and how you can help fight CF in Egypt, find us at https://thebonnellfoundation.org/Sponsor: Vertex Pharma - the science of possibility. https://www.vrtx.comThe original music in this podcast is performed by Kevin Allan, who happens to have Cys