Cutaneous T-cell Lymphoma Cancercare Connect Education Workshops

- Overview of the Challenges Young Adults Living with Cancer Face - Talking with the Health Care Team About Survivorship Questions & Concerns - Choosing Who & What to Tell Others: Disclosure - School: Deciding How to Deal with Financing Education– Community College, Technical Training, College, Graduate School – Scholarships - Financial Concerns, Including Health Insurance, School, College & Career - Knowing Your Rights: ADA (Americans with Disabilities Act), FMLA (Family Medical Leave Act) & Additional Legal Protections - Working During Cancer Treatment: Suggestions from the Health Care Team - Dealing with Physical Changes Due to Cancer or Its Treatment - Short & Long-Term Follow-Up for Young Adult Cancer Survivors: Young Adult Follow-Up Clinic - Coping with Fear of Cancer Recurrence - Guidelines to Prepare for Telehealth/Telemedicine Appointments, Including Technology, Prepared List of Questions, Quality-of-Life Concerns & Discussion of OpenNotes - Questions to Ask Our Panel of Experts

- Overview of Young Adults Living with Cancer, Including Delays in Diagnosis - Where to Seek Cancer Treatment: Selecting Your Oncology Health Care Team, Including Young Adult Cancer Programs - The Importance of Treatment Summaries - Follow Up with Your Oncologist & Primary Care Doctor - Managing Post Treatment Side Effects/Late Effects - Talking with the Health Care Team About Survivorship Questions & Concerns - Financial Concerns, Including Health Insurance Coverage, School, College & Career - Knowing Your Rights: ADA (Americans with Disabilities Act), FMLA (Family Medical Leave Act) & Additional Legal Protections - Choosing Who & What to Tell Others: Disclosure - Working During Cancer Treatment: Suggestions from the Health Care Team - Dealing with Physical Changes Due to Cancer or Its Treatment - Coping with Concerns About Cancer Recurrence - Guidelines to Prepare for Telehealth/Telemedicine Appointments, Including Technology, Prepared List of Questions and Discussion of OpenNotes - Questions to Ask Our Pan

- Why Chemotherapy Causes Treatment Side Effects & Discomfort - Working with Your Healthcare Team to Better Understand & Cope with Potential Treatment Side Effects with a Plan to Manage or Prevent Them - Common Treatment Gastrointestinal (GI) Side Effects - You May Not Experience All of These - Loss of Appetite, Nausea, Vomiting, Mouth Sores, Stomatitis, Diarrhea, Constipation, Weight Gain or Weight Loss - How Health Care Teams Approach Management & Prevention of These Common GI Side Effects - Prevention Strategies - The Role of the Oncology Nurse in Preventing Side Effects - Current Research Directions to Improve Control of GI Treatment Side Effects - Developing a Detailed Plan with Your Oncology Team to Manage and Prevent GI Chemotherapy Treatment Side Effects - The Importance of Being Prepared Before Treatment Starts - New Agents - The Importance of Clinical Trials - Communicating with Your Health Care Team about Quality-of-Life Concerns - Guidelines to Prepare for Telehealth/Telemedicine Appointments, Inc

- Overview of CAR T-Cell Therapies - Understanding CARs – Chimeric Antigen Receptors - When to Consider CAR T-Cell Therapies as a Treatment Choice - Clinical Trials for CAR T-Cell Therapies - Discussion of CAR T-Cell Therapies - Managing Potential Treatment Side Effects - Specific Examples of How CAR T-Cell Therapies Contributes to Oncology Care - Key Questions to Ask Your Health Care Team about CAR T-Cell Therapies - The Benefits of CAR T-Cell Therapies - Follow-Up Care: What to Expect - Guidelines to Prepare for Telehealth/Telemedicine Appointments, Including Technology, Prepared List of Questions & Quality-of-Life Concerns - Questions for Our Panel of Experts

- Definition of a Caregiver - What Research Tells Us About Caregivers’ Well Being - Caregiving for an Older Adult - Caregiving for a Younger Adult - Caregiving for a Friend - Caregivers for Cancer Survivors - Couples, Partners, Siblings & Friends - Family, Partner & Friend Communication - Care Coordination: Challenges & Tips - Stresses on Family, Partners & Loved Ones - Coping with Holidays, Birthdays & Special Occasions - Managing Family, Friends, Partners & Traditions - The Important Role of Long-Distance Caregivers - Practical Tips for Managing Caregivers’ Stress - Strategies for Self-Care - Guidelines to Prepare for Telehealth/Telemedicine Appointments, Including Technology, Prepared List of Questions & Discussion of Open Notes - Questions for Our Panel of Experts

- Overview of Cancer Survivorship - Managing Post Treatment Side Effects/Late Effects - Quality-of-Life Concerns - Fear of Recurrence - Finding Your New Normal - The Importance of Treatment Summaries and Encounter Notes - Follow-Up with Your Oncologist and Primary Care Doctor, Including Discussion of Health Screening and Concerns - Guidelines to Prepare for Telehealth/Telemedicine Appointments, Including Technology, Prepared List of Questions, and Discussion of OpenNotes - Questions for Our Panel of Experts

- Understanding the Future of Cancer Research & Clinical Trials - Increased Focus on Earlier Detection & Treatment of Cancer - Health Care Disparities Research - Enhanced Knowledge of the Molecular Portrait of Cancer - Artificial Intelligence (AI) Driven Approaches for Diagnosis & Treatment of Cancer - Microsatellite Instability (MSI): Mutations in DNA Mismatch Repair Genes – Implications for Treatment - Immunotherapy - CAR T Cell Therapy - Immune Checkpoint Inhibitors & Blockade - Monoclonal Antibodies - Cancer Treatment Vaccines - Immune System Modulators - Targeted Immunotherapies - Radiopharmaceutical Therapy (RPT) - Antibody-Drug Conjugates (ADCs) - Robotic Surgery - Additional Focus on Lifestyle, Exercise, Nutrition & Hydration - Increasing Role of Telehealth/Telemedicine Appointments - Questions for Our Panel of Experts

- Disproportionate Burden of COVID & Cancer on People of Color - Social Determinants of Health, Including Languages Spoken & Health Literacy - Influence of the Local & Regional Environment in Which You Live on Your Access to Oncology Care - Effect of COVID on Health Care Systems - How Race May Impact Your Access to Cancer Treatment, Management of Treatment Side Effects & Pain Management - How to Find the Right Cancer Care Team for You - Access to Cancer Treatment in the LGBTQI+ Community - Costs of Housing & Cancer Treatment - Food & Pharmacy Deserts - Food Insecurity: Tips to Increase Your Access to Health Promoting Nutrition - Work Commitments & Transportation to Treatment - Your Rights Under the Americans with Disability Act (ADA) & Family and Medical Leave Act (FMLA) - How Telehealth May Help You with Greater Health Equity - Practical Tips to Cope with Health Care Disparities: Valuing Your Identity - Guidelines for Telehealth/Telemedicine Appointments, Including Technology, Prepared List of Questions, Tru

- Overview of Blood Cancer Treatments - Understanding Treatment Side Effects - Working with Your Health Care Team to Manage Each Treatment Side Effects - Dealing with Blood Cancer Treatments & Other Co-Morbid Health Treatments - Adjusting to Your Blood Cancer Treatment Over Time - The Importance of Taking Your Blood Cancer Treatment on Schedule – Adherence - Can I Take My Medications at Any Time of the Day? - The Value of Time of Day Consistency in Taking Your Pills - Challenges to Taking Your Treatment on Schedule - Practical Tips & Opportunities to Overcome Them - Review of Resources to Remind You to Take Your Pills on Schedule - Planning Ahead: Lead Time in Refilling Prescriptions, Weekends, Travel & Holidays - Communicating with Your Hematology Oncology Team About Adherence, Including Your Pharmacist - Questions for Our Panel of Experts

- Definition of a Caregiver - What Research Tells Us About Caregivers’ Well Being - Caregiving for an Older Adult - Caregiving for a Younger Adult - Couples, Partners, Siblings, & Friends - Challenges for Caregivers of Cancer Survivors - Family, Partner, & Friend Communication - Care Coordination Challenges & Tips - Stresses on Family, Partners, Friends, & Loved Ones - Coping with Holidays, Birthdays, & Special Occasions - Managing Family, Friends, Partners, & Traditions - Long-Distance Caregiving - Practical Tips for Managing Caregivers’ Stress - Strategies for Self-Care - The Increasing Role of Telemedicine Appointments - Guidelines to Prepare for Telehealth/Telemedicine Appointments, Including Technology & Prepared List of Questions - Questions for Our Panel of Experts

- How Being a Member of Diverse Communities May Impact Your Access to Oncology Care, Treatment, Management of Treatment Side Effects & Pain Management - What to Expect from Your Relationship with Your Health Care Team: Is Your Health Care Team Providing You with Equitable, Excellent Care - What to Consider When Selecting a Cancer Care Team & Treatment Facility - Languages Spoken & Diversity of the Health Care Team - What Is Cultural Humility & How Your Care Team Practices Cultural Humility - When to Seek a Second Opinion: Finding the Best Care - How to Request Copies of Treatment & Pathology Reports - Your Encounter Notes - Key Questions to Ask Your Health Care Team About Your Treatment Plan - How to Self-Advocate with Health Care Staff: Languages Spoken, Disability Services & Other Barriers to Health Equity - Health Literacy: How to Become More Knowledgeable & Satisfied with Your Care - Your Important Role in Shared Decision-Making - Tips to Communicate with Your Health Care Team to Determine if They are the

- Overview of Common Eye & Vision Changes Related to Cancer Treatments - Discussion of Common Eye & Vision Changes, Including Causes & Risk Factors - Tips to Manage Dry Eyes, Watery Eyes, Itching Eyes, Blepharitis, Loss of Eyelashes, Changes in Vision, Cataracts, Floaters, & Flashing Lights - The Role of the Multidisciplinary Team - Tips to Manage Low Vision & How Eye Products Can Help You Manage Eye/Vision Changes - Clinical Trials & Communicating with Your Health Care Team - Guidelines for Eye Examinations & Check-Ups - Quality-of-Life Concerns - Questions for Our Panel of Experts

- Overview of CAR T-Cell Therapies - Understanding CARS – Chimeric Antigen Receptors - When to Consider CAR T-Cell Therapies as a Treatment Choice - Clinical Trials for CAR T-Cell Therapies - Discussion of CAR T-Cell Therapies - Managing Potential Treatment Side Effects - Specific Examples of How CAR T-Cell Therapies Contribute to Oncology Care - Key Questions to Ask Your Health Care Team about CAR T-Cell Therapies - The Benefits of CAR T-Cell Therapies - Follow-Up Care: What to Expect - Guidelines to Prepare for Telehealth/Telemedicine Appointments, including Technology, List of Questions, & Follow-Up Care Appointments - Quality-of-Life Concerns & Discussion of OpenNotes - Questions for Our Panel of Experts

- Overview of the Different Names for Biomarker Testing & Why They Can Be Helpful for Treatment - Tumor Marker Testing, Genomic Profiling, Genomic Sequencing, Molecular Profiling, Next Generation Sequencing - The Relationship Between Biomarker Testing & Precision Medicine - Types of Biomarker Tests for Cancer Treatment - Do I Need Biomarker Testing for My Cancer? - How is Biomarker Testing Done? Using Samples of Your Cancer & Your Healthy Cells - Samples are Sent to the Lab Where Pathologists Test for Certain Biomarkers - Some Results Might Lead to Genetic Testing – Inherited or Germline Mutations - Some Biomarker Testing is Done as Part of Clinical Trials for New Cancer Treatments - Other Uses of Biomarkers – Determining a Person’s Cancer Risk or Finding Cancer - Biomarkers Used to Show if a Treatment is Effective or May Show if Cancer is Returning – Examples Will Be Provided - Biomarkers Play Such an Important Role in Choosing the Best Treatment for You & in Determining Your Progress - Questions for Our Pan

- Why Chemotherapy Causes Treatment Side Effects & Discomfort - Working with Your Healthcare Team to Better Understand & Cope with Potential Treatment Side Effects with a Plan to Manage or Prevent Them - Common Treatment Gastrointestinal (GI) Side Effects - You May Not Experience All of These - Loss of Appetite, Nausea, Vomiting, Mouth Sores, Stomatitis, Diarrhea, Constipation, Weight Gain or Weight Loss - How Health Care Teams Approach Management & Prevention of These Common GI Side Effects - Prevention Strategies - The Role of the Oncology Nurse in Preventing Side Effects - Current Research Directions to Improve Control of GI Treatment Side Effects - Developing a Detailed Plan with Your Oncology Team to Manage & Prevent GI Chemotherapy Treatment Side Effects - The Importance of Being Prepared Before Treatment Starts - New Agents - The Importance of Clinical Trials - Communicating with Your Health Care Team about Quality-of-Life Concerns - Guidelines to Prepare for Telehealth/Telemedicine Appointments, Incl

- Overview and Definition of Biomarkers - What Are Some Examples of Biomarker Testing - How Biomarker Testing Provides Useful Information for Cancer Treatment - Why the Molecular Portrait of Cancer Is So Important - The Role of the Pathologist - Benefits of Biomarker Testing & Precision Medicine - Predicting Response to Treatment - Clinical Trials: How Research Contributes to Your Treatment Options - Key Questions to Ask Your Health Care Team - Guidelines to Prepare for Telehealth/Telemedicine Appointments with Your Health Care Team, Including Technology, Prepared List of Questions & Discussion of OpenNotes - Quality-of-Life Concerns - Questions to Ask Our Panel of Experts

- Unique Needs of Young Adult Cancer Survivors - Identity, Relationships & Intimacy - Dating - Couples/Partners Dealing with Survivorship - Communicating about Sex - Sexuality & Intimacy - Sex Drive: Ability & Desire - Tips to Deal with Vaginal Dryness, Premature Menopause, Erectile Dysfunction, Premature Ejaculation & Sperm Banking - Low Desire: How to Get My Groove Back - Body Image: Feeling Improved Sexual Self-Esteem - Fertility Choices & Coping with Infertility - Medical Options for Assisted Pregnancy - Health Maintenance Needs for Young Adult Cancer Survivors - Long-Term Follow-Up for Young Adult Cancer Survivors - Questions to Ask Our Panel of Experts

- Overview of Cancer & the LGBTQI+ Community, Including HIV & HPV - The LGBTQI+ Community’s Disproportionate Cancer Burden - Addressing the LGBTQI+ Health Disparities Gap, Including Mistrust of Health Care Providers - Barriers to Health Care Access, Including Discrimination - Health Care, Cancer Screening, Palliative and Supportive Care, Affordable Housing - Gay Men & Lesbian Cancer Issues - Transgender/Gender-Nonconforming People’s Cancer Concerns - Challenges for LGBTQI+ Caregivers - Social Security Disability Benefits for LGBTQI+ People Living with Cancer - Military Service and the LGBTQI+ Community - Practical, Financial, Emotional & Social Concerns - Cancer Resources for the LGBTQI+ Community - Questions to Ask Our Panel of Experts

- Overview of Young Adults Living with Cancer, including Delays in Diagnosis - Where to Seek Cancer Treatment: Selecting Your Oncology Health Care Team, Including Young Adult Cancer Programs - The Importance of Treatment Summaries - Follow-Up with Your Oncologist & Primary Care Doctor - Managing Post Treatment Side Effects/Late Effects - Talking with the Health Care Team about Survivorship Questions & Concerns - Financial Concerns, Including Health Insurance Coverage, School, College & Career - Knowing Your Rights: ADA (Americans with Disability Act), FMLA (Family Medical Leave Act) & Additional Legal Protections - Choosing Who & What to Tell Others: Disclosure - Working During Cancer Treatment: Suggestions from the Health Care Team - Dealing with Physical Changes Due to Cancer or Its Treatment - Coping with Concerns about Cancer Recurrence - Guidelines to Prepare for Telehealth/Telemedicine Appointments, Including Technology, Prepared List of Questions & Discussion of OpenNotes - Questions to Ask Our Panel o

- Overview of Blood Cancers, in the Context of COVID-19 - New Research Presented at ASH - Disease-Specific Treatment Updates from ASH on Leukemia, Lymphoma, Multiple Myeloma and Myeloproliferative Neoplasms (MPN) - The Role of Precision Medicine & Clinical Trials - Talking with Your Health Care Team about Your Treatment Options - Communicating with Your Health Care Team with Telehealth/Telemedicine Appointments - Guidelines to Prepare for These Appointments - Key Questions to Ask Your Health Care Team - Quality-of-Life Concerns - Questions for Our Panel of Experts