Alzheimer's Speaks Radio - Lori La Bey

Today we are lucky to have Ann Selfridge the Founder/CEO of the ACT Care Group, who directs a Social Adult Day Program in New York for people with Alzheimer’s/Dementia. She also provides case management for families to help them link to services that will help the families have support to keep their loved ones at home and in the community. Let’s listen to what Ann has learned! Contact Information For Ann Selfridge: Website: www.actcaregroup.com Email: actcares@gmail.com Phone: 718-442-7467 Facebook: https://www.facebook.com/AdultsCommunicatingTogether/ Instagram: www.instagram.com/actcaregroup/ ACT Youtube: https://www.youtube.com/playlist?list=PLV3R7CLHaxm-ImqUJDzHZf3wD8DxgzWvA Additional Resource Information: Alzheimer’s Speaks Resource Website: https://www.alzheimersspeaks.com/ Keynote Speaker: https://www.alzheimersspeaks.com/event-planners Dementia Chats™: https://www.alzheimersspeaks.com/dementia-chats-webinar Dementia Conference & Cruise: https://alzheimersspeaks.com/cruise-with-us Beco

Today we are lucky to have Philip Sloane the Elizabeth and OscarGoodwin Distinguished Professor of Family Medicine and co-directorofthe Program on Aging, Disability, andLong-Term care atthe Cecil G. ShepsCenter for Health Services Research at the University of North Carolinaat Chapel Hill. He co-leddevelopment of Bathing without a Battle andMouth CareWithout a Battle. Today we will discuss his new book, “TheAlzheimer’sMedical Advisor.” Contact Information For PhilipSloane: Address: Department ofFamily Medicine, University of North Carolina, Chapel Hill, North Carolina,27599-7595. Email: Philip_Sloane@med.unc.edu Additional Resource Information: Alzheimer’s Speaks Resource Website: https://www.alzheimersspeaks.com/ Keynote Speaker: https://www.alzheimersspeaks.com/event-planners Dementia Chats™: https://www.alzheimersspeaks.com/dementia-chats-webinar Conscious Caring Resources: https://www.alzheimersspeaks.com/conscious-caring-resources Become Dementia Friendly Bus

Today we are lucky to have Lorinda Porter the Director of Sales & Marketing for SafeTracks™ who is the leader in the design, manufacturing, and distribution of advanced Personal GPS Emergency Communication Devices used to monitor at-risk individuals including those living with Dementia and Alzheimer’s. Learn what role a GPS can play in the lives of Caregivers and those living with Dementia and the recommendations that came out of the “Acceptance of Global Positioning System GPS Technology Among Dementia Clients and Family Caregivers” study. Contact Information For info@safetracksgps.ca 1-877-761-4477 www.safetracksgps.com Finding Your Way Resources: Explanation & Checklist GPS http://findingyourwayontario.ca/wp-content/uploads/2016/03/FYW-Safety-Kit-Locating-Devices-English-Jul2016.pdf Recommended Products https://tech.findingyourwayontario.ca/products Checklist of what to do if someone goes missing http://findingyourwayontario.ca/wp-content/uploads/2016/03/FYW-Safety-Kit-Incident-Response-Chec

Today we are lucky to have Carol Whitlatch, Assistant Director of Research & Education and Senior Research Scientist at the Benjamin Rose Institute on Aging. For over 25 years, Dr. Whitlatch studied a variety of topics related to family caregiving including: developing and evaluating intervention programs including the SHARE program (Support, Health, Activities, Resources and Education) which she will talk to us about today. Join the conversation! Contact Information For Carol Whitlatch: www.benrose.org/share 216.373.1693 share@benrose.org Additional Resource Information: Alzheimer’s Speaks Resource Website: https://www.alzheimersspeaks.com/ Keynote Speaker: https://www.alzheimersspeaks.com/event-planners Dementia Chats™: https://www.alzheimersspeaks.com/dementia-chats-webinar Dementia Conference & Cruise: https://alzheimersspeaks.com/cruise-with-us Become Dementia Friendly Business or Community: https://www.alzheimersspeaks.com/become-dementia-friendlySupport this Show: https://alzhe

Today we are lucky to have Pam Brandon, AGE-u-cate, Ann Catlin, Compassionate Touch and Kayla Gaiennie, Harbor Chase of Plano, Texas. with us to share their passion to shift dementia care. Learn how AGE-u-cate, Dementia Live and Compassionate Touch are changing lives for those living with dementia and what communities applying their techniques are saying. Contact Information For AGE-u-cate Website - www.AGEucate.com Pam - pam@AGEucate.com 817-857-1157 Ann - ann@ageucate.com 417-844-8514 Kayla - kgaiennie@hraonline.net 972-362-1110 Additional Resource Information: Alzheimer’s Speaks Resource Website: https://www.alzheimersspeaks.com/ Keynote Speaker: https://www.alzheimersspeaks.com/event-planners Dementia Chats™: https://www.alzheimersspeaks.com/dementia-chats-webinar Dementia Conference & Cruise: https://alzheimersspeaks.com/cruise-with-us Become Dementia Friendly Business or Community: https://www.alzheimersspeaks.com/become-dementia-friendlySupport this Show: http

Today we are lucky to have Brian Van Buren is a 66 year old black gay man living in Charlotte NC., who was diagnosed with vascular dementia and later Early Onset Alzheimer’s in 2015. Come listen and learn from his journey with dementia. Contact Information For Brian Van Buren: Email: brpvb@aol.com Additional Resource Information: Alzheimer’s Speaks Resource Website: https://www.alzheimersspeaks.com/ Keynote Speaker: https://www.alzheimersspeaks.com/event-planners Dementia Chats™: https://www.alzheimersspeaks.com/dementia-chats-webinar Conscious Caring Resources: https://www.alzheimersspeaks.com/conscious-caring-resources Become Dementia Friendly Business or Community: https://www.alzheimersspeaks.com/become-dementia-friendlySupport this Show: https://alzheimersspeaks.com/donate-now/See omnystudio.com/listener for privacy information.

Today we are lucky to have Lorinda Porter the Director of Sales & Marketing for SafeTracks™ who is the leader in the design, manufacturing, and distribution of advanced Personal GPS Emergency Communication Devices used to monitor at-risk individuals including those living with Dementia and Alzheimer’s. Learn what role a GPS can play in the lives of Caregivers and those living with Dementia and the recommendations that came out of the “Acceptance of Global Positioning System GPS Technology Among Dementia Clients and Family Caregivers” study. Contact Information For SafeTracks info@safetracksgps.ca 1-877-761-4477 www.safetracksgps.com Finding Your Way Resources: Explanation & Checklist GPS http://findingyourwayontario.ca/wp-content/uploads/2016/03/FYW-Safety-Kit-Locating-Devices-English-Jul2016.pdf Recommended Products https://tech.findingyourwayontario.ca/products Checklist of what to do if someone goes missing http://findingyourwayontario.ca/wp-content/uploads/2016/03/FYW-Safety-Kit-Incident-Res

Today we are lucky to have author Suzka with us. She is a painter, muralist, set designer for the Monterey Jazz Festival, cartoonist and now… writer. We will have a wonderful conversation about her book “Wonders In DementiaLand,” which is an Intimate and Whimsical Account of Dementia, Memory Loss, Caregiving and Dancing Gypsie. Contact Information For ‘Wonders In Dementialand’ – available on Amazon Website: www.dementialand.com Facebook: dementialand Facebook: Suzka Susan Collins eAddress: suzka@dementialand.com Twitter: dementialand Instagram: Dementialand Pinterest: Dementialand Dementialand™ Additional Resource Information: Alzheimer’s Speaks Resource Website: https://www.alzheimersspeaks.com/ Keynote Speaker: https://www.alzheimersspeaks.com/event-planners Dementia Chats™: https://www.alzheimersspeaks.com/dementia-chats-webinar Dementia Conference & Cruise: https://alzheimersspeaks.com/cruise-with-us Become Dementia Friendly Business or Community: https://www.alzheimersspeaks.com/beco

Today we are lucky to have three team members; Andrea Carruthers, Jody Loseth and Kathy Thonvold from the West Central Dementia Awareness Network (WCDAN). We talked about their “Forget-Me-Not Memory Café” and several additional dementia friendly efforts they are involved. Contact Information For www.wcdan.com wcdanmn@gmail.com Additional Resource Information: Alzheimer’s Speaks Resource Website: https://www.alzheimersspeaks.com/ Keynote Speaker: https://www.alzheimersspeaks.com/event-planners Dementia Chats™: https://www.alzheimersspeaks.com/dementia-chats-webinar Dementia Conference & Cruise: https://alzheimersspeaks.com/cruise-with-us Become Dementia Friendly Business or Community: https://www.alzheimersspeaks.com/become-dementia-friendlySupport this Show: https://alzheimersspeaks.com/donate-now/See omnystudio.com/listener for privacy information.

Today we are lucky to have Meryl Comer, Ginny Biggar, Greg O’Brien and Terry Frangiosa. We are going to be discussing how in the early stages of dementia, there is great sensitivity around issues of independence and dependency for those living with the disease, as well as how care partners try so hard to figure the best way to support their loved ones. Today our guest will discuss a great new resource to push research forward called the A- List. Contact Information For http://www.usagainstalzheimers.org http://www.usagainstalzheimers.org/blog/magnify-your-voice-join-list-today www.alist4research.org Additional Resource Information: Alzheimer’s Speaks Resource Website: https://www.alzheimersspeaks.com/ Keynote Speaker: https://www.alzheimersspeaks.com/event-planners Dementia Chats™: https://www.alzheimersspeaks.com/dementia-chats-webinar Dementia Conference & Cruise: https://alzheimersspeaks.com/cruise-with-us Become Dementia Friendly Business or Community: https://www.alzheimersspeaks.com

Today we have Peter Rabins, MD, MPH, who is the Author of “The 36-Hour Day.” He is a professor of the practice in the Erickson School of Aging Management Services at the University of Maryland, Baltimore County. He was the founding director of the geriatric psychiatry program and the first holder of the Richman Family Professorship of Alzheimer Disease and Related Disorders in the Department of Psychiatry and Behavioral Sciences of the Johns Hopkins University School of Medicine. Contact Information For Dr Peter Rabin https://jhupbooks.press.jhu.edu/content/36-hour-day www.Amazon.com Additional Resource Information: Alzheimer’s Speaks Resource Website: https://www.alzheimersspeaks.com/ Keynote Speaker: https://www.alzheimersspeaks.com/event-planners Dementia Chats™: https://www.alzheimersspeaks.com/dementia-chats-webinar Conscious Caring Resources: https://www.alzheimersspeaks.com/conscious-caring-resources Become Dementia Friendly Business or Community: https://www.alzheimersspeaks.com/become-

Today we are lucky to have Dawn Fields is the director, producer, editor and co-writer of the multiple award-winning short film Fragile Storm, starring Lance Henriksen, a heartbreaking caregiver story. She is currently focused on promoting the short film, which is now available for free at www.FragileStorm.com and she is also in development on her first feature film. Contact Information For Dawn Field: www.FragileStorm.com Additional Resource Information: Alzheimer’s Speaks Resource Website: https://www.alzheimersspeaks.com/ Keynote Speaker: https://www.alzheimersspeaks.com/event-planners Dementia Chats™: https://www.alzheimersspeaks.com/dementia-chats-webinar Dementia Conference & Cruise: https://alzheimersspeaks.com/cruise-with-us Become Dementia Friendly Business or Community: https://www.alzheimersspeaks.com/become-dementia-friendlySupport this Show: https://alzheimersspeaks.com/donate-now/See omnystudio.com/listener for privacy information.

Today we are so lucky to have Deborah Shouse back with us. Deborah is a very collaborative and supportive partner of those living and dealing with dementia. She is a writer, speaker, editor, former family caregiver, and all around dementia advocate. Deborah’s latest book, Connecting in the Land of Dementia: Creative Activities to Explore Together, features dozens of experts in the field of creativity and dementia. These innovators share ideas that engage the creative spirit so you can continue to experience meaningful moments of connecting.    Contact Information For Deborah Shouse: DementiaJourney.org is her website with weekly ideas for staying connected ? Connecting in the Land of Dementia: Creative Activities to Explore Together https://www.amazon.com/Connecting-Land-Dementia-Creative-Activities/dp/1942094248/ ? Love in the Land of Dementia: Finding Hope in the Caregiver’s Journey https://www.amazon.com/Love-Land-Dementia-Finding-Caregivers/dp/193761249X/ ? Both of these books are available on Amazon

Today we have Corey Rotella who began her work in long term care 2008, starting as a caregiver on the memory care unit. It quite literally changed her life. She is now a member of the Alzheimer's association, a co-author of both the blog and book CNA edge: A voice from the trenches of long term care. Corey was also a keynote speaker along side her co-authors at the 2016 Pioneer Network convention. In her free time she paints, writes and volunteers at a behavioral health center. Contact Information For Corey Rotella: visionaries76@gmail.com coreyannerotella@gmail.com Phone: 508-317-8752 Amazon: https://www.amazon.com/CNA-Edge-Contemplations-Second-Year/dp/1520564074/ Additional Resource Information: Alzheimer’s Speaks Resource Website: https://www.alzheimersspeaks.com/ Keynote Speaker: https://www.alzheimersspeaks.com/event-planners Dementia Chats™: https://www.alzheimersspeaks.com/dementia-chats-webinar Dementia Conference & Cruise: https://alzheimersspeaks.com/cruise-with-us Become Dementia Fr

Today we are lucky to have Brian Van Buren is a 66 year old black gay man living in Charlotte NC., who was diagnosed with vascular dementia and later Early Onset Alzheimer’s in 2015. Come listen and learn from his journey with dementia. Contact Information For Brian Van Buren: Email: brpvb@aol.com Additional Resource Information: Alzheimer’s Speaks Resource Website: https://www.alzheimersspeaks.com/ Keynote Speaker: https://www.alzheimersspeaks.com/event-planners Dementia Chats™: https://www.alzheimersspeaks.com/dementia-chats-webinar Conscious Caring Resources: https://www.alzheimersspeaks.com/conscious-caring-resources Become Dementia Friendly Business or Community: https://www.alzheimersspeaks.com/become-dementia-friendlySupport this Show: https://alzheimersspeaks.com/donate-now/See omnystudio.com/listener for privacy information.

Today we have Peter Rabins, MD, MPH, who is the Author of “The 36-Hour Day.” He is a professor of the practice in the Erickson School of Aging Management Services at the University of Maryland, Baltimore County. He was the founding director of the geriatric psychiatry program and the first holder of the Richman Family Professorship of Alzheimer Disease and Related Disorders in the Department of Psychiatry and Behavioral Sciences of the Johns Hopkins University School of Medicine. Contact Information For Dr Peter Rabins https://jhupbooks.press.jhu.edu/content/36-hour-day https://www.amazon.com/36-Hour-Day-sixth-Alzheimer-Dementias/dp/1421422239/ Additional Resource Information: Alzheimer’s Speaks Resource Website: https://www.alzheimersspeaks.com/ Keynote Speaker: https://www.alzheimersspeaks.com/event-planners Dementia Chats™: https://www.alzheimersspeaks.com/dementia-chats-webinar Conscious Caring Resources: https://www.alzheimersspeaks.com/conscious-caring-resources Become Dementia Friendly Busin

Today we have Celia Koudele’s whose Mother, Grandmother, and an Aunt all died from Alzheimer’s. She worked at the Alzheimer’s Association of Central and Western Kansas for 9 years as a Helpline Specialist. Celia is the author of, “The Little Book for Alzheimer’s Caregivers” to help other families based on her experiences. Contact Information For Celia Koudele Website: www.AlzCaregivers.net Instagram: Alzcaregivers Twitter: AlzheimersCaregivers Facebook: www.Facebook.com/AlzheimersCaregivers.info Additional Resource Information: Alzheimer’s Speaks Resource Website: https://www.alzheimersspeaks.com/ Keynote Speaker: https://www.alzheimersspeaks.com/event-planners Dementia Chats™: https://www.alzheimersspeaks.com/dementia-chats-webinar Dementia Conference & Cruise: https://alzheimersspeaks.com/cruise-with-us Become Dementia Friendly Business or Community: https://www.alzheimersspeaks.com/become-dementia-friendlySupport this Show: https://alzheimersspeaks.com/donate-now/See omnystudio.com/listene

Today we are lucky to have Cameron J. Camp, Ph.D., is a noted psychologist specializing in applied research in gerontology. He currently serves as Director of Research and Development for the Center for Applied Research in Dementia, and gives workshops on designing cognitive and behavioral interventions for dementia internationally.  Elizabeth Kaufman is a Regional Director of Life Enrichment with The Goodman Group. With a strong background in Recreation Therapy and Memory Care, Elizabeth currently works with Dr. Camp to bring Montessori-Inspired Lifestyle to several memory care communities. Contact Information For Cameron J. Camp, Ph.D. Director of Research and Development at the Center for Applied Research in Dementia 440-829-4927?Cameron@cen4ard.com https://www.cen4ard.com Chandler Place contact: Megan Moriarty - 612-788-7321 Additional Resource Information: Alzheimer’s Speaks Resource Website: https://www.alzheimersspeaks.com/ Keynote Speaker: https://www.alzheimersspeaks.com/event-plann

Today we are lucky to have Lola Fraknoi the creator of an Art Kit for people with memory loss and a professor of art in the Older Adult Program at the City College of San Francisco. Lola has over 25 years of experience in the aging field and as the founder and director of Ruth’s Table (a center for multi-generational creative learning) She trained as a professional artist who always finds a way to bring art, music, and creativity of all kinds into the programs she has led. Contact Information for Lola Fraknoi Art Kit Website: www.arttimeprograms.com My Art Website: www.lolafraknoi.com Video about the Art Kit: https://www.youtube.com/watch?v=8Zy9CS_3M3g Additional Resource Information: Alzheimer’s Speaks Resource Website: https://www.alzheimersspeaks.com/ Keynote Speaker: https://www.alzheimersspeaks.com/event-planners Dementia Chats™: https://www.alzheimersspeaks.com/dementia-chats-webinar Dementia Conference & Cruise: https://alzheimersspeaks.com/cruise-with-us Become Dementia Friendly Busine

Today we are lucky two have representatives from Dementia Action Alliance (DAA) with us today to discuss their upcoming conference in Atlanta. Karen Love is the Executive Director of DAA a non-profit, charitable organization working to make dementia symptoms better understood, accommodated and ensuring full inclusion in all matters concerning living with dementia.Robert Bowles is a retired pharmacist who at the age of 64, in 2012, was diagnosed with Dementia with Lewy bodies. Both of Robert’s parents had dementia. Contact Information For Dementia Action Alliance: www.daanow.org info@daanow.org Additional Resource Information: Alzheimer’s Speaks Resource Website: https://www.alzheimersspeaks.com/ Keynote Speaker: https://www.alzheimersspeaks.com/event-planners Dementia Chats™: https://www.alzheimersspeaks.com/dementia-chats-webinar Dementia Conference & Cruise: https://alzheimersspeaks.com/cruise-with-us Become Dementia Friendly Business or Community: https://www.alzheimersspeaks.com/become-deme